show episodes
 
Every person diagnosed with narcolepsy embarks on a unique journey. There is no standard path, and for many, this proves to be among the most challenging aspects of the disorder. The Narcolepsy 360 podcast is a series of interviews that take a panoramic view of narcolepsy from the patient, caregiver, research and clinical perspective. Each conversation draws on experiences, best practices and expert advice from patients, parents and doctors. From the latest research to lifestyle tips, our po ...
 
Susie and Peter are married Masters of Wine (they really should get out more). In this upbeat show they bring wine to life with a smile via interviews, chat, travel, food, tips, gentle bickering, competitive wine-offs and your questions. It’s enough to drive anyone to drink... A top-10 US & UK podcast (Chartable - Apple, Food), recommended in The Daily Telegraph, Evening Standard, Club Oenologique, PodNews and The Drinks Business. Reviews say: 'Laugh-out-loud' (Claire), 'Love these guys (alm ...
 
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show series
 
What's the difference between English sparkling wine and champagne? Why bother doing the Master of Wine qualification? What's the story behind Wine Blast, and why is podcasting so suited to wine? If we could be any wine, what would it be? What to do with a wine festival in lockdown? If we could share a glass of wine with anyone, who would that be? …
 
Nicole Kenyon is a person with Type 1 Narcolepsy. She is also a multi-faceted narcolepsy advocate. She is an author of a memoir, a blogger, legislative advocate, personal trainer and the face of @fitniknarcoleptic Instagram where she shares workout routines. In this episode, Nicole shares how she struggled with excessive sleepiness most of her chil…
 
Our story - as told (in slightly roundabout fashion) to Natalie MacLean on her Unreserved Wine Talk podcast. Beans are spilled...apologies issued...we reveal our career low points as well as what wine has done for our relationship (Susie skates on thin ice). Also why Peter makes a bad Santa and what we think of the fancy dress tendencies of your av…
 
Matthew Horsnell is a person with Type 1 Narcolepsy. He also is a multi-faceted narcolepsy advocate. He’s a speaker, a blogger, legislative advocate and narcolepsy support group leader. In this episode, Matthew and Claire discussed how becoming a dad pushed him to figure out his extreme daytime sleepiness that he dealt with throughout his childhood…
 
New Zealand Sauvignon Blanc is one of the wine world's most dramatic success stories. It went from zero to hero in the 1980s and 1990s, stunning the world with its uniquely extrovert character, and paving the way for an entire nation's wine fortunes to be revolutionised. Some people are a bit snobby about Kiwi Sauvignon - too easy, too obvious, too…
 
Grace McGinnis is a college student studying Pre Med, a Division 1 college athlete and also a person with Type 1 Narcolepsy. In this episode, Grace and Claire discuss how Grace functioned as a “sleepy child” and how she was aware at a young age that her experience of sleepiness wasn’t normal. In her sophomore year of high school, her health and per…
 
We wanted to revisit this (our second ever episode) partly to laugh at our presenting style back then, and also because it's so full of enthusiasm, helpful tips and, most importantly, tales of young people (especially young women) seizing opportunities and forging brilliant careers in wine. And the odd second career too. We're also slightly amazed …
 
How do you fancy getting a name of your choosing on a wine label, benefitting a charity that’s close to your heart…and winning some delicious, unique English wine in the process?! That's exactly what's up for grabs in this episode, in which we discuss our Big English Wine Adventure, chat with superstar UK winemakers Liam Idzikowski (Danbury Ridge) …
 
Dr. George Church is a Professor at Harvard & MIT, co-author of 580 papers, 143 patent publications & the book "Regenesis"; developed methods used for the first genome sequence (1994) & million-fold cost reductions since (via fluor-NGS & nanopores), plus barcoding, DNA assembly from chips, genome editing, writing & recoding; co-initiated BRAIN Init…
 
You like wine. But you don't have lots of space at home. So what's the best way to go about starting (or improving) your wine collection? Listener Steven from Belfast asked the question, which was our cue to spring into action, doling out handy tips and advice, even doing a mini stock-take of our own at-home collection (with eye-opening results...)…
 
Ginna Freehling is a neuroscience graduate and works in cancer clinical research at a biotech company. She is also a PWN. In this episode, Ginna shares how at the age of twenty she started experiencing symptoms of narcolepsy. In the process of trying to figure out what was going on, she was discouraged by her sleep specialist to not seek a formal d…
 
Sommeliers. SO MANY QUESTIONS! What even IS a sommelier - or a Master Sommelier? What makes a great sommelier? How have sommeliers been affected by the pandemic, when hospitality has been devastated? What's all this about the lack of diversity among sommeliers? What of the very serious scandals that have played out in very public and traumatic fash…
 
Dr. Jennifer Gudeman is the Vice President, Medical and Clinical Affairs at Avadel Pharmaceuticals. In this episode, Dr. Gudeman and Claire discuss how Avadel Pharmaceuticals is seeking FDA approval for a once-nightly form of sodium oxybate (FT218) for the treatment of EDS and cataplexy in people with narcolepsy. Dr. Jennifer Gudeman was appointed …
 
For some people, wine is a pain. Up to 10% of the population suffers adverse reactions from drinking wine - and often sulfites are blamed. But what if, in most cases, the exact opposite were true? That sulfites are actually the unfairly maligned hero of the piece, and there's another culprit to blame? More tantalisingly, what if proper action on th…
 
Travis Pavlicek is a husband, father of three and his son Cruz is a child with narcolepsy. In this episode, Travis shares how the onset of Cruz’s narcolepsy symptoms escalated within a span of 3 weeks. He details how his family struggled to find a doctor who knew what was going on with Cruz until finally they drove through the night to Mayo Clinic …
 
What wine goes best with ketchup (or sweet chilli) crisps? What's 'ice cuvée fizz'? How to pair Netflix with wine? How good is Canadian wine, and which are the best ones to buy? Most importantly, how can you win prizes up to the value of CA$400 (or £260)?! It's all here, a small wine universe in a podcast. We're talking to globally renowned wine co…
 
Shamarla Morgan is a PWN and a narcolepsy advocate. In this episode, Shamarla shares how despite a self-diagnosis of narcolepsy type 1 within the first year of her symptoms, it took four years for her to receive a proper diagnosis. She experienced many frustrating interactions with doctors who didn’t take her communication about the disorder and he…
 
Time to spread the wine love! First up, we asked you lovely lot for stories about how and when you first fell in love with wine - so we not only have some brilliant stories to share but also have a WINNER taking away £125-worth of Balfour Winemakers' Collection wines. This is a sponsored episode in partnership with Majestic Wine, so we have some de…
 
Dr. John Peever is a professor of Cell and Systems Biology at the University of Toronto. In this episode, Dr. Peever shares why he got into narcolepsy and other sleep disorders research. He shares what his latest research is focusing on and how sleep research may influence future narcolepsy treatments. In his efforts through research and the Canadi…
 
A wine lover's guide to (relative) sobriety... What DO wine lovers do when we want time off the booze? What's the best lifestyle approach to minimise intake but maximise enjoyment? What are the best wine alternatives out there? Inspired by a question sent in by listener John, in this episode we look beyond wine and explore how to make the most of n…
 
Ginger Zee is the chief meteorologist for ABC News, author, advocate and a person with narcolepsy. In this episode, Ginger shares her journey to being diagnosed with narcolepsy type 2. She also shares about how her mental health was affected by her drug prescriptions to her narcolepsy symptoms. Claire and Ginger discuss how she handles her narcolep…
 
It's hard not to hang on every word of Mounir Saouma's. He's a Burgundy grower with a difference - someone who's not afraid to go against the grain and challenge the easy stereotypes. He doesn't mince his words, which makes for a provocative listen as we talk climate change, pricing (sample quote: 'It's a disaster!') and the 2019 vintage. He even m…
 
To kick off 2021, we dive right into the fascinating, frustrating, compelling wine world that is Burgundy. Iconic - certainly. Over-priced? Plausibly. At great risk from climate change? Undoubtedly. We explore these issues and more across two special episodes - and in this first part we quiz our fellow Master of Wine and renowned Burgundy expert, J…
 
Is champagne a good match for fried chicken? (Or marmite?!) How do you make the perfect Christmas wreath...OUT OF CORKS? What are the best wines to enjoy during the festivities beyond the classics but including Pinot Noir? What seasonal clothing item of Peter's does Susie describe as, 'tasteless'? How to rustle up the most DELICIOUS sausage rolls a…
 
So where does the humble glass bottle fit into the bigger picture of wine? Some are decrying its impact on the environment, citing the carbon footprint of smelting glass and shipping heavy, space-inefficient bottles around the planet. But glass has one of the highest recycling rates of any packaging and has served wine well for centuries, an inert …
 
A trip to *hic* Hollywood via Napa Valley as we chat to Matt Crafton, winemaker at the renowned Chateau Montelena, about serious stuff like making elegant wine in Napa, the wildfires, climate change, sustainability, his lockdown wines and...the film Bottle Shock. This enables us to segue neatly onto a rollicking ride through our (and your) favourit…
 
'My day job is acting but my life is really wine and farming.' So says Sam Neill, world famous for his roles in screen hits like Jurassic Park, Peaky Blinders, Dead Calm and The Piano, but whose real passion is his Two Paddocks wine estate in Central Otago, New Zealand. We caught up with Sam while he was quarantining after arriving back in New Zeal…
 
The wild, fun wine ride continues after a first season full of intrigue, deliciousness and, erm, magnum Jenga. For those who don't know Wine Blast, welcome! We don't bite (unless very thirsty). The show is for everyone - we bring wine to life with a smile, chatting to intriguing people all around the world , sharing our recipes and recommendations,…
 
Where's best for wine travel? (Well - we can dream, can't we?!) The best value bold New World Chardonnays out there? Greek wine? Why no love for Merlot? How to deal with being considered pretentious when it comes to wine?? We answer your burning wine questions and pick our favourite highlights from the 30 episodes to date in this fun, momentous cul…
 
We use our wine festival (formerly Wine Festival Winchester, this year Wine Festival Online) as a springboard to talk English wine, wine education, making a wine festival happen in lockdown, events in general and how normal people engage with wine. We chat to acclaimed English winemaker Emma Rice of Hattingley Valley, Erica Dent of Enjoy Discoverin…
 
So what's the BEST red wine grape variety? Ever? We asked you - and you replied in your droves, more than a thousand of you sending in weird and wonderful suggestions from all over the world. Thank you! We've compiled the results, and the funny comments and goings-on, and you can hear the results in this fun episode. We name names so see if you get…
 
We've reached a tipping point in environmental terms. Not just in terms of biodiversity, climate change, pandemics and the like - but also in the media. Recent releases showcase this trend - from Kiss the Ground (Netflix) to Extinction: The Facts (BBC/David Attenborough) and The Food Programme's English Pastoral episode. All are powerful, terrifyin…
 
So what's been happening to wine during lockdown? It's the BIG question on everyone's lips - and the answer is not what you might expect. We dive right into the debate, throwing about facts, figures and opinions as we go. It does seem as if people revert to the familiar in times of crisis - and we're not afraid to treat ourselves a bit either. With…
 
Belle Hutt is a fitness instructor, influencer, author, advocate and a pwn. In this episode, Belle shares her journey to being diagnosed with narcolepsy type 1. She also shares how she navigated her education while having narcolepsy and not feeling comfortable to disclose to her professors about it. Ultimately, she decided to get personal trainer c…
 
Chile is a wine scene stuck on fast forward. Many of the most exciting projects lately have been developed in the country's deep south, where the cooler conditions mean more elegant, refreshing wines (and respite from a decade-long drought). And these aren't projects for the faint-hearted: we visit a new vineyard on a remote island 1,200km south of…
 
Dr. Indra Narang is the Director of Sleep Medicine at the Hospital for Sick Children, in Toronto, Canada. She is also an Associate Professor at the University of Toronto. Dr. Narang specializes in many sleep disorders including pediatric obstructive sleep apnea and narcolepsy. She established the first pediatric narcolepsy clinic in Toronto which i…
 
There is FREE medal-winning wine to be won for UK-based wine lovers in this episode, which ties in with the virtual ceremony for the Wine GB Awards 2020. Tune in for more details! Also to hear Susie’s views, in the wake of the trophy announcements for these awards, on what, where and who are providing the real excitement in English and Welsh wine r…
 
Emily Kreuziger is a mom, a professional snowmobiler and a person with narcolepsy. In this episode, Emily shares her long diagnosis process. After being diagnosed and learning more about narcolepsy, she realized her first symptoms started 10 years prior to her actual diagnosis. She also shares how she went from originally being diagnosed with IH, t…
 
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