show episodes
 
"Heart to Heart with Anna" is the longest-running podcast devoted to the congenital heart defect (CHD) community. Our shows feature Survivors, family members, medical professionals and others in the CHD community who wish to share their stories, expertise, and advice. This show is devoted to empowering, educating and enriching the lives of members of the CHD community.
 
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show series
 
What was it like to grow up with tetralogy of Fallot in the 1980s? How can having a heart defect influence your career choice as an adult? What psychological challenges do Heart Warriors face? Joy Ogawa was born in Hawaii with tetralogy of Fallot in 1979 and had an open-heart surgery at 22 months of age. She considers herself lucky to have only exp…
 
Paul Cardall was born in 1973 with only half a heart. He had his first open-heart surgery a few hours after birth and two more surgeries at age 13 and 14. As a child, he took piano lessons but wasn’t keen on practice. As a teenager, he started composing and became obsessed. He was hired to play at weddings, in restaurants, and in department stores.…
 
Why might a Heart Mom choose to volunteer with an advocacy organization? What can an advocacy organization do to help others learn about congenital heart defects? What are the future plans for Conquering CHD and how can people get involved? Liz Schurrer is mom to eight-year-old Eli, who was prenatally diagnosed with truncus arteriosus. Her family’s…
 
Why would an artist choose a career working in the operating room of a pediatric hospital? What joy is to be had of drawing broken hearts and the operations surgeons use to save these critically ill babies’ lives? In what other ways does artist Susan Russell Hall find joy in art? Susan Russell Hall is a Northwest artist and medical illustrator who …
 
What can a healthcare advocate learn by becoming a patient facing a life-and-death situation? Why might a patient advocate write a book about his life-changing heart event? How does someone who has worked in the field of healthcare for 37 years see the field of healthcare changing to better suit the needs of patients? Thomas Dahlborg is from Brockt…
 
What is congenitally corrected transposition of the great arteries or ccTGA? Historically, people born with ccTGA tended to do fairly well. Why is it today doctors are choosing to operate on the hearts of babies born with ccTGA? What does Dr. Edward Bove think about the future of babies born with ccTGA? Erin Beckemeier is mom to Conway, born in 200…
 
What happens when a Fontan patient needs a tune-up? What kinds of procedures might a Fontan patient need after living with a Fontan heart? What can we learn from an experienced Fontanner who might be facing multiple medical procedures? Leslie Castro is a 48-year-old former single ventricle patient from Pennsylvania. She was born with tricuspid atre…
 
What happens when one daughter, in a set of twins, is diagnosed with a congenital heart defect and the other twin is heart-healthy? How can a family handle having one child in the hospital, separated from her twin? What should families tell their children about their medical history? What is the value of sharing family stories? Lisa and Michael Oli…
 
How can a mother, grandmother, and great-grandmother -- determine how to help families like her own? Why would a woman make it her mission to help others with an invisible illness? What can we learn from such a woman? Jackie Renfrow thought her family had a history of epilepsy. After losing her son Jimmy in 2000 and her daughter Crissy in 2002, she…
 
Heart Warrior Lisa Dang Colvil returns to "Heart to Heart with Anna" but this time she is joined by her mother and her daughter. Lisa was born with a complicated congenital heart defect and Anna talks to her mother, Kim, about her experience fleeing war-torn Vietnam, having a daughter in a country where she barely knew the language, and what it was…
 
Mike Edenburn was born in 1943 with Tetralogy of Fallot (ToF). Mike was the 44th patient to receive the Blalock Taussig shunt. On October 2, 1945, Dr. Alfred Blalock, Vivian Thomas, and Dr. Denton Cooley performed heart surgery on Mike. After the surgery, Mike turned from blue to pink and was able to breathe freely for the first time in his life. M…
 
Is it possible to meet one’s surgeon over 4 decades after open-heart surgery when you don’t even know if your surgeon was a man or a woman and you only know the last name? Who can help you when the hospital tells you that they don’t have your records anymore? What joy is to be had from connecting with someone who saved your life when you were a lit…
 
Why would a Heart Warrior choose to become a Nurse Practitioner? What does the liver and liver health mean to a Fontan Heart Warrior? What does the future hold for people with single ventricle hearts and compromised livers? Mary is a 29-year-old female with hypoplastic right heart syndrome, atrial septal defect, transposition of the great vessels, …
 
What can encourage a Heart Warrior to start learning more about her heart condition? What kind of books has Margaret Ellis Raymond written and what’s the hold-up with the 4th and 5th books? Why would a Heart Warrior start a YouTube channel and what can we expect to see on that channel? Margaret Ellis Raymond is an author, editor, and YouTuber from …
 
Leslie Castro is a 47-year-old former single ventricle patient from Pennsylvania. She was born with tricuspid atresia, pulmonary stenosis, and multiple other heart defects, and had the Classic Fontan at the age of 12 in 1985. Just over a year ago, she received a heart transplant. Her donor was a 29-year-old woman who was a Hepatitis C positive intr…
 
Who is Eric Ankerud? Why would someone want to start a nonprofit organization to help the congenital heart defect community? What services does Heartfelt Dreams Foundation provide? Eric Ankerud's wife, Lori, was born in 1958 with a serious heart defect called 'tetralogy of Fallot.' Lori was known as a "blue baby," and she had a ventricular septal d…
 
What is it like to be born in Vietnam in the 1970s with a heart defect? What efforts would a mother make to ensure her daughter has a chance for life? How does understanding one’s family history impact one’s future? Amy M. Le shares an amazing story with Anna about her mother's life-changing decision to flee war-torn Vietnam to save her daughter's …
 
It's official! We are celebrating 300 episodes of "Heart to Heart with Anna"! To help us with this celebration, Alexander Jaworski, Anna's son who was born with a critical congenital heart defect, is the Guest Host and Anna is in the hot seat answering questions about the podcast which you may not be aware of. How did the longest-running podcast de…
 
What lessons can we learn from our adult Heart Warriors? Why might a Heart Mom write a book about her life experiences dealing with CHD? How does a Heart Mom take her personal experiences to fight for others in the hospital? Jenny Muscatell is a licensed social worker, blogger, author, photographer, and podcaster. She earned her Bachelor’s in Menta…
 
Why would the Queen of England bestow an Order of the British Empire honor upon a doctor for his services to medicine and charity - especially when the charity does not serve the children of Great Britain? How many children around the globe have been saved by this nonprofit? What is this nonprofit organization doing to save children born with the n…
 
How might a Heart Warrior use her adversity to become a poet? What might bring a woman to accept Jesus Christ into her life and thus change her future forever? What can we learn from this gentle spirit who has come close to death herself and lived to bring hope to others? Today’s show is Lisa Colvil: Heart Warrior Author and Poet and our Guest is L…
 
How can a couple survive the loss of their precious son? What can be done when an entire country seems to be neglecting the needs of its most vulnerable residents? How can people make a difference in their community? Today's Guest, Jyoti Sagar, answers those questions and so much more! Jyoti Sagar and his wife Prema lost their son Sameer, who was b…
 
In this touching episode of "Heart to Heart with Anna," grandmother Beverly Foster shares with Anna her heart journey with her grandson, Heart Warrior Dhillon. From diagnosis through today, Dhillon's spirit remains steadfast and everyone knows exactly what he would want them to do. Thus, Beverly and her family felt the need to create a special lega…
 
How can a child with a complex congenital heart defect survive multiple surgeries resulting in a funky anatomy and then have a successful heart transplant experience? What was it like to be a child with a congenital heart defect in the 1970s when open-heart surgery for children was something new? Why would a Heart Warrior experience Survivor's Guil…
 
What is plastic bronchitis? What are the red flags that lead to a diagnosis of plastic bronchitis and how is it diagnosed? More importantly, what can be done about it? Today’s guest will answer those questions for us and more! Molly Fee is a mom of two boys and lives SE of Pittsburg. Her 9-year-old younger son, Marshall, was born with hypoplastic l…
 
Nino Barbalace es il conduttore della versione in Italiano del Programma di "Cuore a cuore con Anna." La puntata di oggi è intitolata “L’Arte di Riparare il Cuore”, e la nostra ospite è Gabriella Ricciardi. Inizieremo la puntata di oggi conoscendo meglio Gabriella ed il suo costante amore per l’arte nella Prima Parte. Nella Seconda Parte, parleremo…
 
What kind of career field can a woman passionate about art and science enter into to satisfy both of her needs to be creative? What attracted Gabriella Ricciardi to the field of cardiothoracic surgery for tiny broken hearts? Exactly how can artistic talents be of value to a surgeon of babies with broken hearts? Today’s show is 'The Art of Repairing…
 
Do Heart Moms who have babies with heart defects have an easier time of things? Why would a Heart Mom write a book? What might entice a Heart Mom to start a podcast? Answers to these questions and more are in this week's episode of "Heart to Heart with Anna." Nicole Groenewald is a Heart Mom to Henry who has HLHS. At the time that Nicole found out …
 
What is the situation like for people with congenital heart defects in India? What happens to our Heart Warriors as they grow up? What does the Heart Community need to do in order to have a sense of justice for those born with broken hearts? Sajani Nair lives in Calicut, India, and is the mother of Yadhu Krishna, a young man living with congenitall…
 
What is it like to be an adult with a congenital heart defect whose heart has given out? What does a typical journey on the road to transplant like? Does it look anything like what we see portrayed on television or in movies? Lorrie Hill grew up in Texas, mostly Houston and Dallas. She was born with a single ventricle heart and has had three open-h…
 
Do you have a child with tetralogy of Fallot (ToF)? Do you wonder what that child's life might be like? Do you ever worry about how you will help your child move beyond childhood into adulthood where your child will be in charge of his/her own healthcare? Deborah Meisten and her husband are the parents of a baby who was born with tetralogy of Fallo…
 
For decades the medical profession was engrossed in finding a way to help babies born with congenital heart defects to survive infancy and early childhood. It seemed relatively rare for babies born with complex congenital heart defects to become adults. Now there are more adults alive with congenital heart defects than infants being born with such …
 
Loyal Listeners of "Heart to Heart with Anna" will remember Keith Flynn from 2019 when he came on the show to talk about his need for a heart and liver transplant. He graciously agreed to periodically return to let everyone know what it's like to be on the list waiting for organs and to share his experience with us. It's been about a year since we …
 
Why did the statuses for being listed for a heart transplant change in 2018? Why would someone born with a congenital heart defect need a transplant and how do they compare to adults born with healthy hearts who suddenly need a heart transplant regarding where they would fall on "the list"? What are some of the devices used as a bridge to transplan…
 
What was it like to be born in 1965 with a severe congenital heart defect in Venezuela? What kind of care was available there? What was a parent to do? Tune in to this week's episode of "Heart to Heart with Anna" to hear Belen Blanton talk with Anna about her heart journey, how she made it to the USA, and why she has started a nonprofit organizatio…
 
Do you know how many children are born every single year around the world with the most common birth defect? What percentage of children born with this condition actually live in a country where appropriate care is available? What are non-government organizations (NGOs) doing to bridge the gap between in care for these most vulnerable people? Tune …
 
David Franco was born on December 19, 1966, with congenitally corrected transposition of the great arteries (or cc-TGA). David was actually a pioneer as an early cc-TGA Survivor. He was an avid athlete, an advocate for the congenital heart defect (CHD) community, and a devout Catholic. David passed away after over 5 decades of living with his funky…
 
What is it like to be a physician assistant working in the NICU and then having your firstborn son admitted to the same NICU? Meagan Sheakoski talks to Anna about her experience with Anna after giving birth to a son who had an unknown birth defect. It wasn't until after her son was born that a problem presented itself. Meagan shares what it was lik…
 
Texas Reardon is a Heart Warrior. Whitney is his wife of 10 years. Born with a host of congenital heart defects, Texas explains to Anna, in this episode of "Heart to Heart with Anna," about his complicated medical history, and some consequences he's had to face due to falling out of medical care for years. Whitney shares her story, with Anna, about…
 
Ten years ago, Chelsea King discovered that the twins she carried had a potentially deadly secret. The months that followed were full of doctor's appointments, a move to another city, bed rest, and concern. Tune in to hear Chelsea King talk with Host Anna Jaworski about what it was like for her to go from diagnosis through surgeries, and into 2020.…
 
Barbara Ann Angarone is an adult born with a rare congenital heart defect known as dextro-transposition of the great arteries or d-TGA. She had an operation known as the Mustard Procedure. In this episode of "Heart to Heart with Anna," Barbara shares with Anna what it was like growing up with d-TGA, her medical history and complications, and what i…
 
Jeffrey Romine is a CHD survivor, nurse, and patient advocate. Thirty years ago he was born with dextro-transposition of the great arteries,d-TGA, and was the first patient in his hometown of Wichita, Kansas to receive the arterial switch operation (ASO). Afterward, he had two more surgeries during childhood to repair pulmonary stenosis. He is a li…
 
Heart Mom and Registered Nurse, Lori Irvin, joins Anna in this July 2020 episode to talk about COVID-19 and a complication that happens in some children called "MIS-C." Lori joins Anna to talk about the challenges and concerns surrounding coronavirus for families with a child who has a congenital heart defect (or CHD) and offers her perspectives an…
 
Heterotaxy Syndrome is a rare congenital disorder which usually includes a complex congenital heart defect. In this episode of "Heart to Heart with Anna," Faith Earnest, a heterotaxy syndrome survivor, shares with Anna what she has uncovered with her research, what her life has been like growing up with this rare congenital syndrome, and what she b…
 
Born in 1960, Kimberly Russell was diagnosed as a "blue baby" and wasn't expected to survive infancy. Kimberly Russell's care for her complex heart was always just a step behind what was necessary to keep her alive. In 2020, Kimberly is preparing to celebrate her 60th birthday with a complex congenital heart defect and she wants to give back to the…
 
Daphne Davis-Patrick is a mother, a grandmother, a nurse, and an author. She joins Anna in this episode of "Heart to Heart with Anna" to share her cardiac journeys as multiple members of her family have had to deal with living with congenital heart defects. Along this journey, Daphne's family discovered a hereditary defect that has affected two of …
 
Biörn Ivemark is credited with the discovery of Ivemark Syndrome in 1955. According to the National Organisation for Rare Disorders, Ivemark Syndrome is comprised of: 1) an absent or underdeveloped spleen, 2) cardiovascular anomalies and 3) abnormal placement of the organs in the chest and or abdomen. Julia Mayfield is an adult born with this rare…
 
Brandon Lane Phillips and Jeremy Miller are unlikely friends. Brandon was born with tetralogy of Fallot and lived with his family in Louisiana. Jeremy was a child actor, perhaps best known for his portrayal of Ben Seaver on the hit 1980s sitcom "Growing Pains." The two men met when Brandon, at age 11, had a wish granted to him and he had a chance t…
 
Annie Ulchak is a unique Heart Warrior. Born in Lima, Peru in 1979 with nomenclature HLHS, she came to the United States for life-saving surgery, after she was adopted. She joins Anna on this episode of "Heart to Heart with Anna" to talk to her about what her medical journey has been like, what complications she has encountered as an adult, and how…
 
Sandra Wallis is the author of "Not What I Bargained For: My Journey Raising Four Incredible Kids, Including Two With Severe Medical Conditions." She joins Anna in this episode of "Heart to Heart with Anna" to talk about what it was like for her to raise two children with special needs and how she because an author. With one child born with spina b…
 
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