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About IBD

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About IBD

Amber J Tresca

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About IBD focuses on issues vital to people living with Crohn's disease and ulcerative colitis (collectively known as inflammatory bowel disease). Patients, physicians, and caregivers give their opinions and advice on a variety of topics including nutrition, treatments, mental health, family dynamics, and sexuality as it relates to living with IBD.
 
The Beautiful Bag is a Podcast for anyone who is in an Ostomy, may have to be in one and those that want to learn more about what life is like living in one. Each week I will be hosting a guest, sharing a story or educating you on what it is all about. I am happy to have you here!
 
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Kya’s story started as a teenager and was definitely a wild ride for a few years! She went from having an Ostomy to a j-pouch, then while she was pregnant with her first child, had surgery for an Ostomy. She is such an inspiration and has so much courage speaking on this and helping others so that they are not afraid to ask questions and talk about…
 
Working out & yoga, women empowerment, health & nutrition, getting your mind right, and Intuitive eating! All things we talk about in today’s podcast with the amazing Nina Hayes! If you have ever wondered or worried about the quiet yoga studio and your ostomy acting up, or learning more about proper nutrition, or even traveling with an ostomy, you …
 
How do your pets help you with your IBD? I speak to Meredith Mangold, "The Bowel Battling Badass,” about the role her dogs have played in her life. She became seriously ill with ulcerative colitis, which progressed into a rare complication called toxic megacolon. As her journey with IBD progressed, she eventually needed colectomy surgery, and has s…
 
Angie is a special guest because she is actually our first guest that was pregnant when she had her early stages of Ulcer Colitis! And shortly after giving birth to her son, she had to have a life-saving surgery which resulted in having an Ostomy and she has had one for 39 years! Angie also plays a huge part in our Ostomy community, just being ther…
 
I sat down with Meghan this week to answer some questions many of you may have or have been wondering. Can I really work out!? The answer my friends is YESS!! The number one reason I think why you need to work out with or without an Ostomy is so that YOU CAN FEEL GOOD!!! Moving your body feels so good, and you will feel so much better mentally and …
 
From super healthy, to waking up with intense pain from a kidney stone, to finding cancer within such a short period of time at the beginning of 2020. Tom’s life changed dramatically with 1 visit to the ER. He had stage 3 cancer that required him to get a Urostomy and a Colostomy, completely changing his life. But with the support of his wife and c…
 
Did you know that someone with an Ostomy has to stay more hydrated than someone without one? This is because our intestines pull out water from our food to keep us hydrated. But with an Ostomy. the food skips this step. This means, our body is not pulling the same amount of water from the food. This is why it is so important for someone with an Ost…
 
The back to school period is already a time of so much change but once again in this pandemic, parents and school systems are also facing difficult choices. The experiences of families during the pandemic has been diverse, which means that individual needs need to be addressed. But how do we manage that? Dr Brad Jerson Pediatric Psychologist in the…
 
I always get asked, aren't you afraid of a hernia, aren't you afraid of something happening in your ostomy? When it comes to working out with an Ostomy. And to be honest.. I have never been worried about!! I just don't think about it! Before I ran, weight trained did HIIT workouts and after I had my Ostomy, I have slowly been getting back into all …
 
I was always a beach bum and rocked a bikini. ⠀⠀⠀⠀⠀⠀⠀⠀⠀ But in the last 5 years after having my Ostomy, there were definitely times that I didn't feel so confident wearing a bikini to the beach or pool. ⠀⠀⠀⠀⠀⠀⠀⠀⠀ It has taking me a few years to not compare myself to others or worry about what others may think or questions they may ask. ⠀⠀⠀⠀⠀⠀⠀⠀⠀ So…
 
This is the second part of my conversation with Kathleen Nicholls, author of "Go Your Crohn Way: A Gutsy Guide to Living with Crohn's Disease” and "My Flare Lady: A Handbook for Today's (Diseased) Dame.” Hear the first part in Episode 97, where Kathleen tells us about her Crohn’s disease diagnosis and how blogging became the way she processes her d…
 
At birth, Nikki’s parents were basically told by doctors that because of her family history, they should be watchful of her health. She immediately as a baby could not tolerate dairy and always had stomach issues. And as she got older, it was apparent that she would inherit the same UC issues her family had. For years Nikki struggled with painful U…
 
This woman is miraculous! She has had both of her bags since she was 3 years old after a rare form of childhood cancer required her to get a Colostomy as well as a Urostomy. After years of being apprehensive to share her story, she finally realized that she had to talk to others about her journey and raise awareness of what it was to have an Ostomy…
 
Life with inflammatory bowel disease (IBD) brings challenges and many life changes but it can also sometimes bring unexpected opportunities. Kathleen Nicholls, author of "Go Your Crohn Way: A Gutsy Guide to Living with Crohn's Disease” and "My Flare Lady: a handbook for today's (diseased) dame” was diagnosed with Crohn’s disease in her 20s. She sta…
 
Kevin was a healthy 28-year-old who loved to work out and was working on his black belt in jujitsu. Then all of a sudden he became really ill. He chalked it up as his IBS but when the symptoms got worse and worse he knew it was something else. He got to the point where he could not eat, he was sick all day long, and he could feel his body slowly sh…
 
In this week's episode, I speak with guest Erica Olson. We talk about: - Being a Crohns warrior at 14 - Not keeping weight on - Getting her life back - Going from only laying on the couch to doing/being Buring man, fire spinning, Burlesque, sky diving, and more. Also the BEST bag leak story I have heard yet! Follow me on Instagram @leeannehayden or…
 
In this week's episode, I speak with guest and new friend Darlene, we discuss: - Finding out you have Cancer - Becoming a new ostomate and going through chemo/radiation during Covid - having a great attitude - being open to work-family, family, and friends about what is going on - Talking to your employer - "I am not going to be crippled by this" Y…
 
The patient advocacy space is lacking the voices of men and especially men of color. The result is that the IBD community is not diverse enough to provide the kind of support that they need. Jordan McConnell, the founder of Crohn’s Veteran, is looking to change the dynamics of the online IBD space. Jordan served in the military and was eventually d…
 
In this week's episode, I speak with guest Bruce Levinson, we discuss: - finding out you have cancer - going from eating poorly to studying everything you can about health and healthy eating - complications that change your life and your marriage - Marriage - Your mind, body and soul You can find Bruce on FaceBook Connect with me on Instagram @leea…
 
What is the next innovation in the treatment of inflammatory bowel disease (IBD)? Is it the microbiome? Stem cells? Or, is it the emerging field of bioelectric medicine? IBD is a complicated disease to treat and can bring complications and other, related conditions. The problem is the immune-mediated nature of the disease and how it affects the ent…
 
In this week's episode, I speak with my new friend Megan, we discuss: - being born prematurely - having 2 ostomy surgeries - eating healthy and finding your foods after surgery - having a supportive spouse - finding confidence you never knew you had after surgery You can find Megan on Instagram @l_ostomy_life_and_loving_it Connect with me on Instag…
 
In this week's episode, I speak with guest Scott Meadows. Scott was born with Spina bifida and has been in a bag since the age of 5. We talk about: - what life was like as a child - being part of a team - deciding not to hide - creating a community - relationships & more.... You can find Scott and the Facebook Group "Body Positivity for Ostomy" on …
 
Motherhood comes in all shapes and sizes. The intersection of inflammatory bowel disease (IBD) and motherhood is often left out of the discussion and single motherhood and IBD is pretty much ignored altogether. That's why I asked my close friend and co-founder of IBDMoms, Brooke Abbott of The Crazy Creole Mommy Chronicles, to tell me about her chal…
 
In this solo episode, I share what my life has been like these last 5+ years with my husband John. I get a little personal in here and discuss intimacy, our sex life, some stories of how I had to change my way of thinking. I hope you enjoy this episode and learn from it. Life really doesn't have to change. Follow me over on Instagram @leeannehayden…
 
In this week's episode, I speak with guest April Wilson also known as @thatgirlwithabag on Instagram. April is a mom, wife, Army veteran who has a business creating gorgeous ostomy covers. We discuss... - How a bacterial infection created colitis - Talking her Drs into an ostomy - Jpouch - Creating a business out of her message Follow me on Instagr…
 
It's one thing to talk to your physicians about becoming pregnant when you live with ulcerative colitis or Crohn's disease. But what about getting the benefit of experiences from the mothers who have been through a pregnancy, birth, and breastfeeding journey? Former news anchor and current blogger and Crohn's patient Natalie Hayden gives her experi…
 
In this week's episode, I speak with guest Mackenzie about her journey in a bag 2x. We talk about: - being in a bag as a young girl - having it reversed - finding the strength to tell your parents I am not ok - getting a bag for the second time Connect with me for daily motivation on Instagram @leeannehayden or TikTok @leeannehayden1 or my website …
 
In this week's episode, I speak with guest Stephanie Bension about her life in an ostomy. Stephanie is a public speaker, ostomy advocate and is creating her happiness from scratch. We talk about: - Dating with an ostomy - How to communicate with your support system - what you can eat and maybe not eat - Tips and tricks to make life easier - How an …
 
We used to be told that women with IBD couldn’t have children. We were also told people with IBD shouldn’t have children. The truth is this: women with IBD get pregnant and have healthy pregnancies and babies. We have more evidence and guidance than ever before. Gastroenterologist Dr Jill Gaidos, Associate Professor of Medicine in the section of Di…
 
In this week's episode, I speak with guest Molly. We discuss: - Living on laxatives through middle school & high school - When your organs & muscles are not correct - Thinking you're going to have a resection but are getting an ileostomy instead - Dealing with the shock - Ehlers Danlos Syndrome - When your collagen is like jello instead of being st…
 
Hey, it's Amber. I want to tell you about my limited podcast series, Healthcare Disparities in IBD. IBD used to be thought of as a Western disease. Something that happened in developed countries like the United States, Canada, the UK, and Australia. IBD was also thought to mainly affect White people and people of Jewish heritage. However, these dem…
 
In this week's episode, I speak with guest Kim Fleck. We discuss: - Her perspective on her journey which is still going on - When they can't figure out what's wrong - When you are the 1-2% of the population the nothing works and everything that can go wrong does - When the infusions make you lose your hair all over - Having brain lesions & living w…
 
In this week's episode, I speak with guests Danielle and Joe from Double Baggin It. We discuss: - Finding your community - Support groups & where to find them - Doing something with their voices to bring awareness - What you go through having Crohns (Joe) / Colitis (Danielle) - When there's no bathroom around - What their lives are like with their …
 
Have you ever seen a person who lives with inflammatory bowel disease (IBD) in a movie or TV show? If so: was the depiction positive or negative? My guest is actor, writer, and filmmaker Derek Mari. Derek lives with Crohn's disease and his IBD journey inspired him to create a story that explores the way people cope with living with a chronic illnes…
 
In this episode I speak with Brianna - The Laughing Stoma on Instagram about: - living in different countries in an ostomy - getting your Ileostomy at 24 - When Drs can't figure out what is wrong - Diagnosed with Ehlers- Danlos Syndrome - How to deal with leakages - What life has been likeBy LeeAnne Hayden
 
Telling your Crohn's disease or ulcerative colitis story is powerful. It can be freeing but it can also come with some unexpected side effects. Welcome back Rosanne Mottola, who originally intended to talk over receiving her second dose of the Pfizer BioNtech COVID-19 vaccine. She told her ulcerative colitis story and about receiving her first dose…
 
In this episode with guest Sam Abarca we discuss: - When Colitis comes on during your pregnancy - Being on every kind of medication - Needing to know where all the toilets are - Being a nurse and taking care of ostomy patients - Becoming an ostomy patient - Finding others online who are in ostomies to relate too - Being able to enjoy life now - run…
 
In this weeks Episode I speak with Krista Nickerson also known as my gut instinct on Instagram. We talk about: - being diagnosed with Crohns at 9 years old - living with the disease her entire life - advocating for herself - how to come out of a dark place - having ostomy surgery right before her wedding - what life has been like these last 3 years…
 
Living with one disease is bad enough, but living with two adds more than two times the complexity. As a young man, Aaron Blocker was diagnosed with Crohn’s disease after years of coping with strange and seemingly disconnected signs and symptoms. He continued to have problems which resulted in two hip replacements that were blamed on prednisone. Ho…
 
In this episode we discuss: - Knowing something is wrong at the age of 12 but being too embarrassed to say anything - Trying to live a life as a teenager while being on medications to help with your issues - Having surgery after 20 years - Defining moments - Overcoming the obstacles You can find Michelle on Instagram @michellevalentino…
 
In this weeks episode I speak with guest Carly Allen. We talk about: - finding out you have stage 3 vulva cancer at 38 - when you don't look like you are sick - surviving cancer and finding out it came back - what lead to the ostomy - Living with and Ostomy for live Connect with Carly on Instagram @ostomate_and_the_city…
 
During times of stress, our personal relationships may suffer. In the pandemic, we are finding ourselves spending a lot of time with those in our households, and for couples, that can start to take a toll. Certified sex educator Kait Scalisi, founder of Passion By Kait, shares her knowledge and experience as a neuroscientist, public health professi…
 
In this weeks episode I speak with guest Joy Wilde. She shares her story about starting to live in an Ostomy from her mid twenties. -Diagnosed with Chronic Ulcerative Colitis at 21 - Living in pain - Different diets - BCRR (internal pouch) - Having an external Ileostomy Connect with Joy on Instagram @the.art.of.ostomy.maintenance - Dating with an o…
 
In this weeks episode my special guest Amanda Ambroise talks about having severe belly pain and what she found out. - 3 surgeries in 5 months - living with a temporary Ileostomy - finding out you had twisted colon - when you are about an hour away from dying - living life in such a positive way Find Amanda on Instagram @amandaambroise_fitmomof3…
 
People with IBD and other chronic conditions have questions about receiving the COVID-19 vaccination. Rosanne Mottola works at a hospital and was therefore eligible to receive a vaccination through her employer. Rosanne gives her experiences and takeaways as a "mild to moderate" ulcerative colitis patient and how she made the decision to receive th…
 
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