Huntington S Outreach Project For Education At Stanford public
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Having a family isn’t an easy task, but it’s a dream that many young couples hope for. When a genetic neurodegenerative disease is part of the picture, though, what does having a family look like? Today in the HOPES Podcast, we meet with a couple who found out their HD status completely by chance - and in a pretty unusual way. HD changed not only t…
 
As rare as Huntington’s Disease is, even rarer is Juvenile Huntington’s Disease (JHD). What is JHD? How is it different from HD? What is it like to have JHD? Learn about JHD and hear from a caretaker of a JHD patient on this month’s HOPES Podcast!The music heard in today’s episode was found on freemusicarchive.Podcast produced by Sammy Potter and C…
 
If you had the power to know if you would develop a neurodegenerative disease, would you want to know? How could that choice be impacted by the dynamics of family, finances, and mental health? We talk to a young woman whose family has been impacted by Huntington's Disease and how she and her siblings have dealt with the dilemma of whether or not to…
 
The HOPES podcast is back! In episode 4, we spoke with Anna Canoni, Woody & Marjorie Guthrie’s granddaughter, about how Woody’s battle against HD spiraled into the international HD community we have today. From this point forward, we plan on putting out a new episode every month.For more information on Woody Guthrie Publications, visit www.woodygut…
 
In our third episode, the HOPES podcast talks to Dr. Lisa Stanek, Senior Principal Scientist at Sanofi, about her Huntington’s Disease research. Dr. Stanek’s paper discussed in this episode can be found at: https://www.ncbi.nlm.nih.gov/pubmed/24484067. The music heard in today’s episode was found on freemusicarchives and includes the following:“Car…
 
We share stories of caretakers, doctors, people with Huntington’s Disease, and others in the Huntington’s community. This podcast is run by HOPES, the Huntington’s Outreach Project for Education, at Stanford.In the first episode, historian Alice Wexler guides us through the history of Huntington's Disease. Music is from freesound.org and Free Music…
 
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